Leukodystrophy Resource and Research Organisation Inc. | Incorporated No. IA41033

Educational Resources

Nurses ALF A4 Double Sided Brochure

PDF Nurses ALF A4 Double Sided Brochure


Red Flag: Primary Adrenal Insufficiency in Young Boys is a Red Flag for ALD

PDFRed Flag


Avoiding the Misdiagnosis of Adrenoleukodystrophy: Distinguishing ALD from ADD/ADHD

In diagnosis, one letter in the alphabet can make a life-saving difference. Adrenoleukodystrophy (ALD), while a rare disorder, is important for clinicians to keep on their radar screen since it is typically fatal though amenable to treatment in its earlier stages.
pdficon_largeAvoiding the Misdiagnosis of Adrenoleukodystrophy

These leaflets are designed for you to use yourself and to share with your consultant and any other medical, social and educational professionals involved. Although a lot of the information can be used worldwide, some of it is specific to the UK, in particular regarding health and care services. However, we are happy to send abroad where required.


Adrenoleukodystrophy: ALD 101

PDF1.1 What is ALD brochure

PDF1.2 How is ALD inherited brochure

PDF1.3 Symptoms of ALD

PDF1.4 What Can I do to Stay Healthy

PDF1.5 Current Medical Therapies

PDFALD School Brochure


 

ALD Life Information Leaflets

These leaflets cover all aspects of living with the ALD gene and are generously provided here for your information courtesy of ALD Life:

pdficon_largePractical Information for Males with Symptomatic ALD
pdficon_largePractical Information for Males with Asymptomatic ALD
pdficon_largePractical Information for Men with AMN
pdficon_largePractical Information for Women with AMN
pdficon_largePractical Information for Female Carriers of ALD